Parenting, special needs parenting, Williams Syndrome

Williams Syndrome Wednesday: A good day ain’t got no rain

A mother raising a child with Williams syndrome, holding her baby in the nicu

Raising a child with Williams syndrome, I’ve learned a lot.

Like that Paul Simon knows some things about some things.

“She said a good day ain’t got no rain. She said a bad day is when I lie in bed and I think of things that might have been.”

A mother raising a child with Williams syndrome, holding her baby in the nicu

So one of my amazing sponsors gave some lovely kids books to The Auction for Alma. And one is called “Someday my Love” and it’s the story of a new mom and all the hopes and dreams she has for this baby girl.

Except she missed a few:

Like “Someday my love, I’ll hold you without all these tubes”

or “Someday, my love, I’ll hear you say Mama, and know the 2 year wait was worth it”

and “Someday, my love, we’ll go to a park that can accommodate your walker and you’ll play hide and seek with kids instead of stuffies”.

Plus “Someday, my love, you’ll have a friend”

And, not to give the book away,  “Someday, my love, when you’re hair is grey and I’m gone, maybe you’ll know, in your heart, I did the best I could. And hopefully it was enough.”

Yeah, the book doesn’t go like that. The baby arrives, and a page later smiles, then talks and runs and skips. The little girl rides a bike and has besties and then a beau. She has a little baby of her own that the storyteller gets to hold and love like her child all over again. And then the mom is gone at the end, but the girl has a college education and a family. She’s not alone.

There are no bumps in the road. No glitches. No bad days, boo hoos or why me’s.

I used to think that would be our someday before, you know, just before.

Now our somedays aren’t the kind that people write books about. They’re the kind that make people give the pity face, and the deep sighs when they hear about you.

i know this because I’ve been telling a lot of people about you these days.

But as I picked myself up this morning and dusted myself off, I recalled that our somedays aren’t yet written. And with the right amount of hard work and love and luck, our somedays could very well exceed my wildest dreams.

I really hope the person in the auction who gets the books has all the somedays they read inside. But, please know that  if you’re like me, raising a child with Williams syndrome, or some other unexpected circumstance, and the somedays look a little different, there will be many, many good days that ain’t got no rain.

And nobody is gonna fault you one bit if every now and again, you lie in bed and think of things that might have been.