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williams syndrome wednesday

Disability Parenting, special needs parenting, Williams Syndrome

Lessons for life prepare kids for a better world

child with Williams syndrome giving a presentation in kidergarten

Lessons for life prepare kids for a better world Kindergarten registration time is here in Ontario. I recently stopped by my daughter’s former special needs pre-school to talk to nervous parents about choosing the right school for their kids. Trying to decide where to have their kids spend the next 8-10 years of their lives is tough. When you child had a disability, it feels impossible to make the call. I feel exceptionally lucky that my daughter has the placement she does. Now in SK, she loves school, has friends, is with her peers and is thriving. It’s been like…

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Williams Syndrome Wednesday: 5 lessons from #WSA2016

Williams Syndrome Wednesday Lessons from #WSA2016 - mommydo.com Featured Image

I had the wonderful privilege of attending the WSA Williams Syndrome Convention in Columbus Ohio last week. As the ambassador for Canadian families, I connected with friends made in years’ past and made new friendships with fellow Canadians and with parents and individuals with Williams Syndrome from all over the US. Attending a big gathering of Williams Syndrome families is exceptionally rewarding. The information presented is invaluable, even if it is a little overwhelming. And the tactics, strategies and trial and error shared by other parents give a real, honest, uplifting and sometimes heartbreaking look into the lives of those…

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Williams Syndrome Wednesday: Crafting with Exceptional Kids

Part of my New Years #thive2016 resolution is ensuring the whole family thrives. So over the weekend I thought we should do a typical family activity. We should make a craft. But special needs crafting ideas are hard to come by. Not only do both my kids like to make things, Allie gets to work on some of those “therapy skills” when she’s doing crafts at school. Why not do one at home? I found an easy craft over at The Inspired Home and rounded up all the supplies. This isn’t something we’ve done at home much so I had no idea…

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Williams Syndrome Wednesday: Advice for new members of the Special Needs Moms Club

It’s not earth shattering. In fact, it’s probably the same advice you got when you first started dating years ago. And, I wish someone had given it me. Here it is: Hang on to your friends.  Hang on tight. Here’s why: There’s going to be a time when they surround you. They’ll be there for you. They won’t know what to say and will probably say things that they regret or things that make you cringe. They will probably stick their feet in their mouths (Will she ever be normal?). Yikes. But that’s just because they don’t know what to…

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Williams Syndrome Wednesday: 140 Characters CAN Change the World

I recently wrote about the NYT best-selling novel that I stopped reading because the author had used the r-word (retarded) in the book, published this year. I had a big long rant on my own little blog and when I published the post felt very pleased with myself. After a few days I realized I was still mad. It’s like when someone says something that you disagree with and instead of speaking up, you walk away and think about all the things you wish you had said out loud. So I decided to tweet the author and let her know that I…

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Williams Syndrome Wednesday: To the best-selling author who robbed me of the ending

Williams Syndrome Wednesday: To the best-selling author who robbed me of the ending I used to be a big time reader, but these days, I’m often too busy to laze around devouring books like I used to. I have work and family responsibilities including caring and advocating for my daughter who happens to have an intellectual disability. Getting to sit down and read an entire book is a luxury I can rarely afford. Lucky for me, I was recently sent on a business trip. On a plane. Away from home. No inflight movie for me. I was thrilled to be able…

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Williams Syndrome Wednesday: #winparenting

Williams Syndrome Wednesday: #winparenting One of the little secrets of parenting that no one likes to talk about is that we all want to win. I know, I know, parenting is not a competition. But it kind of is. It’s a competition with yourself to have your kids turn out in the way that you believe is best for them. I’m not talking about making them something they’re not. (Though sadly, some people see it this way ). I mean having kids choose to play a sport you played, or go to your alma mater or love reading as much…

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Williams Syndrome Wednesday: R you kidding?

The R-Word. It’s a hotly debated topic. I know right? What’s the debate? It’s not a nice word. It makes a whole class of people feel bad. It’s used by bullies to make perfectly normal people feel less than. But amazingly, just about every time I tell someone they shouldn’t use the R word after they r-bomb it onto a conversation with me or it appears as someone’s post on my Facebook newsfeed, I get a whole host of excuses. I’ve heard “yes, I really need to stop saying that because now my kids are saying it”. I’ve heard “I’m…

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Williams Syndrome Wednesday: There may not be a plaque

There may not be a plaque with Allie’s name on it, or a wing of a hospital named after her or all the Williams Syndrome benefactors that are rallying around our fundraiser. There will likely never be enough zeros on our efforts to be considered newsworthy. No hand shaking photos. No press release. There will be a lot of hustle. A lot of late nights and early mornings. A lot of no. And I mean A LOT of no, I can’t help. But there is also yes. An echoing chorus of yes. Each yes turning someone else into a yes,…

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Williams Syndrome Wednesday: The other shoe dropped

Have you seen this shoe? Lost Wednesday between Heath St. and Yonge St and Bloor Station – east-west plaform. Travelled south on Yonge to St. Clair and then south on the Yonge line to Bloor, tranferring to the Danforth line. I have seen the shoe and the jaw dropping bill that came with it. It is one of two lovely shoes, one of which has taken a vacation from my daughter’s foot and landed somewhere in our fair city. She’s a kids, kid’s lose shoes, I get it. On a philosophical level I totally get it. But for me it…

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