Williams Syndrome Wednesday: The other shoe dropped

by , on
May 20, 2015

Have you seen this shoe? Lost Wednesday between Heath St. and Yonge St and Bloor Station – east-west plaform. Travelled south on Yonge to St. Clair and then south on the Yonge line to Bloor, tranferring to the Danforth line.

10005919_10155265818640584_9048967674745012948_o

I have seen the shoe and the jaw dropping bill that came with it.

It is one of two lovely shoes, one of which has taken a vacation from my daughter’s foot and landed somewhere in our fair city.

She’s a kids, kid’s lose shoes, I get it. On a philosophical level I totally get it.

But for me it was an all out, full stop, leave work emergency.

You see, these shoes…for a baby…cost almost $250. Yes – these pink and black combat boots for babies cost a LOT.

And the thought of losing one put me over the edge. Not only are they supremely pricey – they also come from a store that is an hour drive each way, and is only open 9- 5, five days a week. So replacing these not-so-cute boots for baby also costs 2 vacation days – one for the initial measuring and one to go for the fitting once they come in four weeks later.

It also means at least 4 weeks without these shoes, which provide the stability for her to use her walker and hopefully in the not-too-distant-future, walk independently. She needs the shoes.

Shoemageddon also brought one of those moments. Those “these are the real truths about having a kid like Alma” moments.

Of course there are the BIG DEALS – the health issues, worries about the future and education, the possibility of employment, will she be able to live independently, will anyone come to her birthday party? Will she be the one that people say “nobody can stand that kid, she just bugs people”?

This was one of the everyday moments that remind me that every little thing is just a little bit different. That losing a shoe brings a wave of dread. That she still can’t walk and who knows when she will. That her shoes cost as much as a week of summer camp for our son. Will we have to choose or can we swing both?

We kind of skim along the surface most days. We know there are differences. We know there are challenges. We try to ignore them and just enjoy both kids as they are.

But then, something small happens. A little shoe drops, and you’re right back in the thick of it all over again.

If you see the shoe, please message me or tweet me @mommydoCA

Follow me on Instagram

Don't miss a thing. Follow now!