Tag

parenting

Feeding Sir Picky Pants, Food

The pickiest

My boy is THE pickiest eater. I’m sure it’s our own fault for about a million reasons but I’m working very hard at fixing the situation. One thing I’m trying is getting him to participate in making his own food when I can. It seems to work when we can pull it off. Last weekend I had him make is own pizza for lunch. We used the Kraft Pizza Kit which I have mentioned before that we love for a quick, homemade-ish crust in 5 min flat. Apparently he pays more attention to what’s going on around him than I…

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Williams Syndrome Wednesday: We get it wrong too

I have a confession to make. I seem to have a large foot stuffed in my mouth over and over again. I keep saying the wrong thing -particularly to one parent who has an older boy with significant physical disabilities and a second, a typical child Obi’s age. See, even that, is that the right way to say that? The most recent foot-in-mouth incident arose when I was piping up in a conversation between said woman, another woman with a boy about Obi’s age who has similar developmental delays and myself. The woman with the boy close to Obi’s age…

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Stop riding that penguin.

The words “Stop riding that penguin, we have to leave” actually came out of my mouth as I tried to hustle our 4 year old out the door the other day. He was bobbing around on one of these, much to Obi’s dismay.   But that’s not the funny part. As soon as the words were spoken, I giggled, remembering this poster that I pinned on Pinterest a few years ago. https://www.etsy.com/listing/95865884/things-ive-said-to-my-children-penguin?ref=tre-2722984995-1 At the time I thought it was hilarious. Now that it actually applies, I think I might just have to order one. This guy – who has a…

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Update: We Did Good (Random Act of Kindness)

So a week ago today I posted here about a Random Act Of Kindness. I urged readers here and on Facebook to join me in voting for a photo in the Virginia State Parks First Hikes contest so the family could win a 1-week stay in the park of their choice. I found a blog post on the Love that Max Link-UP from the blog Cheering On Charlie about the photo contest she’d entered. When I read this “At first, I wasn’t sure I wanted to enter the contest. Quite honestly, I have become afraid to hope for things.” I…

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Williams Syndrome Wednesday: Something Nice

Something nice happened when I learned I had a child with Williams Syndrome. I became a nicer person. I became a person who couldn’t afford to be completely self centered (though I am ashamed to say, I found those 40 self-centered years to be pretty fun. And I never really gave any thought to why there was a problem with that). Overnight I came to understand that I would not make it through this process alone – that none of us makes it through this alone. Oh, and that there were people I should have tried harder to be there…

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Williams Syndrome Wednesday: The Joy Edition

I wrote an entirely different post. But when I read it, it was well… sad. You see, it was this time last year that things started to go south fast in my pregnancy. Warning signs lead to tests lead to hospital bed rest lead to more failed tests lead to worry about baby’s safety lead to emergency c-section lead to Christmas, New Year’s, my birthday in the NICU lead to home on RSV season house arrest lead to a laser focus on Obi’s delays lead to tests lead to diagnosis lead to more tests, therapies, adjusting to the new normal….

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Williams Syndrome Wednesday: Genes or Just Because?

So there’s this problem we’re having. It’s kind of like when a baby isn’t sleeping through the night… except that by ‘not sleeping through the night’ I mean “baby won’t close her eyes for any reason, like not even to blink between 11pm and 2,3,4,5 am”. The time on the clock is variable but the effect is the same. We live in a zombie like state. We’re 4 weeks from one year of not getting any freakin’ sleep. We have devised a system whereby one parent stays on the main floor with baby and weathers the sleepless storm of tears,…

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I learned something about my little guy.

The boy isn’t a big party guy, despite my pulling out all the stops this past weekend. Like, spent the whole party saying “I want to go home!” I’m working on a post about the party, my new lens and other goodness, but in the meantime, that there is the grumpy guest of honour. I got this superfab idea and template for the sign here at 733blog.com. melanie

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Williams Syndrome Wednesday: I’m not special and my brain hurts

I’m tired of reading things like “God only gives special children to special parents” and “she couldn’t have come to better parents”  or best “special needs parents are the bravest/strongest/whateverest”. Pffht. My child is special. ALL children are special, but one of mine needs a little more than most. This has very little to do with the kind of person I am or am not. That being said, I am the kind of person who needs to know things. I’m a why? what next? and when? person. So it comes as no surprise that I struggle a little with the…

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Christmas Card Looks For Kids

Trying to decide what to dress the kids in for our Christmas cards photoshoot this week with the lovely and talented crew at barebonephoto. I’m super excited but I’m not sure I have the right outfits. There are still a few days to think about it. Do you do photo cards? Whole family or just kids or pets? Christmas Card Looks For Kids on Polyvore Gap Striped Boatneck Dress – french vanilla gap.com Gap Bow Ponte Dress – red gap.com Gap Plaid Lined Knit Waist Straight Jeans – denim gap.com Gap Convertible Plaid Double Weave Shirt – ariel yellow gap.com…

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