Tag

mommy guilt

Life

I put my kids before my heart and thought I was going to die

big blue peaceful sky with fluffy clouds

I put my kids before my heart and thought I was going to die It’s been a year since the day I thought I was going to die. Mother’s Day 2017 started like any other day… well not really. I got tea in bed and handmade gifts and whatnot. There was family brunch and a walk on the beach. Then I put my kids before my heart health, and things went terrbily wrong. We’d been on the same family walk countless times, but this is the only one I remember. The sky was blue, the air was cool, but not…

Continue reading...
Related posts
With a child with an intellectual disability, money matters.
April 13, 2018
Lessons for life prepare kids for a better world
February 16, 2018
Forward – The Word for 2018
January 1, 2018
Parenting, special needs parenting, Williams Syndrome

Williams Syndrome Wednesday: Finding ‘our people’

Mommy groups filled with typical mommies caring for typical babies can feel very isolating. I’ve learned when you’re parenting a child with a developmental delay caused by a genetic issue, it’s really hard to relate. In addition to the day-to-day feeling that you can’t keep up with the conversations about what’s happening with the babies that one-by-one pass yours by, there’s the uncertain future that makes you, and others, uncomfortable. For instance, you often hear, I’m letting my baby XXX (co-sleep, have a pacifier, potty-train when ready, skip tummy time) because no one every goes to university (sleeping in their…

Continue reading...
Related posts
I put my kids before my heart and thought I was going to die
May 13, 2018
With a child with an intellectual disability, money matters.
April 13, 2018
Lessons for life prepare kids for a better world
February 16, 2018
Parenting

Pumpty Dumpty

Pumping. It’s the norm for mom’s whose teeny babies are in the NICU. The hope is, with a little time to grow and practice eating, the babes with transition to nursing if that’s what the Mom wants, and the pump becomes a distant memory. In a less rosy version of the story, teeny baby is born, Mom starts to pump and baby won’t nurse well enough to get discharged. So the bottle gets introduced to help get baby home and the attempt to nurse continues at home. The Mom tries absolutely everything while continuing to bottle feed some of the…

Continue reading...
Related posts
I put my kids before my heart and thought I was going to die
May 13, 2018
Forward – The Word for 2018
January 1, 2018
Williams Syndrome Wednesday: 5 lessons from #WSA2016
July 11, 2016