Tag

developmental delays

Disability Parenting, special needs parenting, Williams Syndrome

Lessons for life prepare kids for a better world

child with Williams syndrome giving a presentation in kidergarten

Lessons for life prepare kids for a better world Kindergarten registration time is here in Ontario. I recently stopped by my daughter’s former special needs pre-school to talk to nervous parents about choosing the right school for their kids. Trying to decide where to have their kids spend the next 8-10 years of their lives is tough. When you child had a disability, it feels impossible to make the call. I feel exceptionally lucky that my daughter has the placement she does. Now in SK, she loves school, has friends, is with her peers and is thriving. It’s been like…

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special needs parenting, Williams Syndrome, williams syndrome wednesday

Williams Syndrome Wednesday: 5 lessons from #WSA2016

Williams Syndrome Wednesday Lessons from #WSA2016 - mommydo.com Featured Image

I had the wonderful privilege of attending the WSA Williams Syndrome Convention in Columbus Ohio last week. As the ambassador for Canadian families, I connected with friends made in years’ past and made new friendships with fellow Canadians and with parents and individuals with Williams Syndrome from all over the US. Attending a big gathering of Williams Syndrome families is exceptionally rewarding. The information presented is invaluable, even if it is a little overwhelming. And the tactics, strategies and trial and error shared by other parents give a real, honest, uplifting and sometimes heartbreaking look into the lives of those…

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Williams Syndrome

#WSHappywalk The Happiest Twitter Party Around

mommydo.com | #WSHappyWalk Twitter Party for Williams Syndrome

Yes, I said Happy Party. And yes, #WSHappyWalk is about a rare syndrome called Williams Syndrome. A rare syndrome you’ve likely never heard of, unless you’ve ever spent any time in a room with me, and then you’ve probably heard more than you care to about it. At some point in that conversation you probably thought, “wow, I’m glad that’s not me.” And you likely had to stop yourself from making the pity face. And I get it. Having a child with a rare syndrome that comes with the potential for countless medical challenges – cardio, kidney, gastro, hearing, sight and…

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special needs parenting, Williams Syndrome

Williams Syndrome Wednesday: We become the parents our children need us to be

I’ve recently been told I’ve really taken to this whole ‘advocacy thing’. Which I suppose is true, but doesn’t really say all that much about me. Other than that I am a parent. And that’s what parents do. I’m quite certain that if you asked all the parents sitting at any given hockey rink at 6 am on any given Saturday, many wouldn’t have pictured themselves freezing their butts off 2-3 mornings a week. Ditto for the dad’s sitting at ballet recitals talking about turnout, mom’s debating the relative strengths and weaknesses of the Ninja who make up Sensei Wu’s…

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Angry Rants, Parenting, special needs parenting, Williams Syndrome

Here, of all places, watch your mouth.

That’s what I felt to today while at developmental play group. Every week Obi and I participate in a play group that integrates typical kids with those who are experiencing developmental delays. Some are preemies who are just a little behind. Others, like Obi have a diagnosis. And the rest are just typical kids who come to take advantage of the program which includes free play, social snack time, gym time and music all in one fab morning a week. The group takes place in a specially designed room for the 0-2 set in a building that houses an integrated…

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April 13, 2018
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