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angry rants

Angry Rants, Williams Syndrome

Williams Syndrome Wednesday: To the best-selling author who robbed me of the ending

Williams Syndrome Wednesday: To the best-selling author who robbed me of the ending I used to be a big time reader, but these days, I’m often too busy to laze around devouring books like I used to. I have work and family responsibilities including caring and advocating for my daughter who happens to have an intellectual disability. Getting to sit down and read an entire book is a luxury I can rarely afford. Lucky for me, I was recently sent on a business trip. On a plane. Away from home. No inflight movie for me. I was thrilled to be able…

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Angry Rants, Parenting, special needs parenting, Williams Syndrome

Here, of all places, watch your mouth.

That’s what I felt to today while at developmental play group. Every week Obi and I participate in a play group that integrates typical kids with those who are experiencing developmental delays. Some are preemies who are just a little behind. Others, like Obi have a diagnosis. And the rest are just typical kids who come to take advantage of the program which includes free play, social snack time, gym time and music all in one fab morning a week. The group takes place in a specially designed room for the 0-2 set in a building that houses an integrated…

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The day I realized I will never be the same.

Things happen in life that change you. And you don’t really notice the affect until one day when you find you’re just not the same person you were before. Today was that day for me. Oh, and it REALLY pissed me off. Let me explain. It’s fitting that this epiphany happened at Starbucks. I’m a big fan. Mmm, grande awake tea. Anyway, earlier today I headed to ‘bucks, girl in the buggy, trying to get her to nap. As I was passing through the door, a guy was coming out. He held the door for me and, over my head,…

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