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williams syndrome wednesday

disability, Disability Parenting, Parenting, special needs parenting, Williams Syndrome, williams syndrome wednesday

Starting school with disability #WilliamsSyndromeWednesday

Starting School with a Disability | Mommydo.com

There are two parts to registering a child who is starting school with a disability. There’s the functional part – who do you see, what do you need to bring? And then there is the emotional part. This is not about the functional part. Enrolling our daughter in school was the hardest thing I’ve dealt with on our parenting journey. So hard that it’s taken me a year to talk about it. But today, when I saw that another mom I know is in the same place I was last year, I felt it was time to open up. I’m going to skip…

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Williams Syndrome Wednesday: 5 lessons from #WSA2016

Williams Syndrome Wednesday Lessons from #WSA2016 - mommydo.com Featured Image

I had the wonderful privilege of attending the WSA Williams Syndrome Convention in Columbus Ohio last week. As the ambassador for Canadian families, I connected with friends made in years’ past and made new friendships with fellow Canadians and with parents and individuals with Williams Syndrome from all over the US. Attending a big gathering of Williams Syndrome families is exceptionally rewarding. The information presented is invaluable, even if it is a little overwhelming. And the tactics, strategies and trial and error shared by other parents give a real, honest, uplifting and sometimes heartbreaking look into the lives of those…

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Williams Syndrome Wednesday: An Open Letter To Justin Trudeau

An inclusive school system would see my children as equal  Dear Mr. Trudeau, I just watched a video in which you spoke of the tremendous value of the diversity in our public school system. I, too, value the ethnic diversity in my son’s public school in our neighbourhood. Sadly, without an inclusive school environment, my daughter won’t get to experience it. While we have worked tirelessly to include those of every race/ethnicity, culture, religion, gender, social class, and sexual orientation in our schools, kids with disabilities don’t always make the cut…at least not always in the school closest to home. Kids like my…

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Parenting, Williams Syndrome, williams syndrome wednesday

Williams Syndrome Wednesday: See the Hope

See the hope We’re about to deliver something very precious to you, and without your support, it won’t make it. We’re entrusting our sweet little girl to you, but that’s not what I’m talking about. When we drop her off to you, we’re delivering our hope. Take good care of it. We hope that she will be challenged but not left behind. We hope that she will be included, but also be seen as an individual that needs more. She will need more to learn. More to succeed. And more to thrive. She will need therapists, friends, caregivers, nurturers, protectors,…

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#thrive2016, Parenting, Sewing and Other Crafting Disasters, Williams Syndrome, williams syndrome wednesday, Year to Thrive

Williams Syndrome Wednesday: Crafting with Exceptional Kids

Part of my New Years #thive2016 resolution is ensuring the whole family thrives. So over the weekend I thought we should do a typical family activity. We should make a craft. But special needs crafting ideas are hard to come by. Not only do both my kids like to make things, Allie gets to work on some of those “therapy skills” when she’s doing crafts at school. Why not do one at home? I found an easy craft over at The Inspired Home and rounded up all the supplies. This isn’t something we’ve done at home much so I had no idea…

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Williams Syndrome Wednesday: Permission to Let It Be

Sometimes it’s nice to hear someone say “Things are ok as they are.” This week’s dose of chillax came from the special feeding clinic that baby Obi now attends. Feeding has been a huge struggle right from day one. We finally got her eating pureed baby food at about a year. We’ve been trying to increase textures but not having any luck. And do you know what the experts said? Let her eat purees. Thicken them slowly over months and months. Stop pushing her to move ahead faster than she can. It’s ok. You know, it’s not ok for me…

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Williams Syndrome Wednesday: 1 in 20,000 is the lonliest number

Yeah, I know, I’ve missed a few Wednesdays. I totally had ‘that thing’ happen. The one where you have something on your mind and you really want to say it – but it’s such a big friggin’ downer for you and everyone else that you don’t say it. And then, as it’s all you want to say, you can’t think of anything else to say, so you just say nothing. Yep. I’ve said nothing these past weeks because I don’t want to actually commit these words to print “it’s just not the same”. There, it’s out there now. I have…

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Williams Syndrome Wednesday – As Long As She’s Healthy

I overheard someone talking to a pregnant woman the other day and realized something. I have a little confession to make. I’m carrying around a little guilt. And it’s probably nothing, but it’s weighing on my mind. I heard the expectant woman say “the phrase.” I’m willing to bet every pregnant person has said it at some time or another. I said it.  I said “We just want a healthy baby.” And, “I don’t care what we get, as long as it’s healthy”. We all say it – but we don’t really think things will turn out any other way….

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Williams Syndrome Wednesday: Let’s be better

I posted earlier this week about an incident that happened while Obi and I were out in the world. If you missed the post, you can read it here. I had interesting responses but the one that has stuck with me the most was a facebook comment saying “he should be fired”. There was a time when I would have agreed that he should be. But these days I know getting him let go wouldn’t help him in the long run. He’d probably storm home or out with his friends and say that the mom of some “enterdisparagingremarkhere” kid got…

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Williams Syndrome Wednesday: I want to be…

A few weekends ago I attended the national conference for Williams Syndrome and they had a talent show for the individuals with WS one night. There were all kinds of acts, stand up comedy, a family of 3 young children that wrote and performed a song about the loving nature of the WS kid of the family, some “just stand up and sing” acts. All in all, there were some impressive numbers – these kids were real crowd pleasers – but one in particular stood out to me. A young boy, maybe 5 or 6, stood up and sang “I…

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