Category

Williams Syndrome

Disability Parenting, special needs parenting, Williams Syndrome

Lessons for life prepare kids for a better world

child with Williams syndrome giving a presentation in kidergarten

Lessons for life prepare kids for a better world Kindergarten registration time is here in Ontario. I recently stopped by my daughter’s former special needs pre-school to talk to nervous parents about choosing the right school for their kids. Trying to decide where to have their kids spend the next 8-10 years of their lives is tough. When you child had a disability, it feels impossible to make the call. I feel exceptionally lucky that my daughter has the placement she does. Now in SK, she loves school, has friends, is with her peers and is thriving. It’s been like…

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Disability Parenting, Williams Syndrome

Inclusion in education teaches lessons for life

Firs

We’re coming up on that time of year again. It’s time for parents to register the next class of JK  kids for school. It’s only been a year and a half since I was the one trying to come to terms with finding a place for my girl to learn and grow and thrive. It sounds overly dramatic, but when your child has a disability, finding a school placement that fits your vision for your child takes over your life. It’s about more than the bricks and mortar. It’s about finding a school board and a school that place the…

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disability, Disability Parenting, Parenting, special needs parenting, Williams Syndrome, williams syndrome wednesday

Starting school with disability #WilliamsSyndromeWednesday

Starting School with a Disability | Mommydo.com

There are two parts to registering a child who is starting school with a disability. There’s the functional part – who do you see, what do you need to bring? And then there is the emotional part. This is not about the functional part. Enrolling our daughter in school was the hardest thing I’ve dealt with on our parenting journey. So hard that it’s taken me a year to talk about it. But today, when I saw that another mom I know is in the same place I was last year, I felt it was time to open up. I’m going to skip…

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Williams Syndrome Wednesday: 5 lessons from #WSA2016

Williams Syndrome Wednesday Lessons from #WSA2016 - mommydo.com Featured Image

I had the wonderful privilege of attending the WSA Williams Syndrome Convention in Columbus Ohio last week. As the ambassador for Canadian families, I connected with friends made in years’ past and made new friendships with fellow Canadians and with parents and individuals with Williams Syndrome from all over the US. Attending a big gathering of Williams Syndrome families is exceptionally rewarding. The information presented is invaluable, even if it is a little overwhelming. And the tactics, strategies and trial and error shared by other parents give a real, honest, uplifting and sometimes heartbreaking look into the lives of those…

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Williams Syndrome

#WSHappywalk The Happiest Twitter Party Around

mommydo.com | #WSHappyWalk Twitter Party for Williams Syndrome

Yes, I said Happy Party. And yes, #WSHappyWalk is about a rare syndrome called Williams Syndrome. A rare syndrome you’ve likely never heard of, unless you’ve ever spent any time in a room with me, and then you’ve probably heard more than you care to about it. At some point in that conversation you probably thought, “wow, I’m glad that’s not me.” And you likely had to stop yourself from making the pity face. And I get it. Having a child with a rare syndrome that comes with the potential for countless medical challenges – cardio, kidney, gastro, hearing, sight and…

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Williams Syndrome Wednesday: An Open Letter To Justin Trudeau

An inclusive school system would see my children as equal  Dear Mr. Trudeau, I just watched a video in which you spoke of the tremendous value of the diversity in our public school system. I, too, value the ethnic diversity in my son’s public school in our neighbourhood. Sadly, without an inclusive school environment, my daughter won’t get to experience it. While we have worked tirelessly to include those of every race/ethnicity, culture, religion, gender, social class, and sexual orientation in our schools, kids with disabilities don’t always make the cut…at least not always in the school closest to home. Kids like my…

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Parenting, Williams Syndrome, williams syndrome wednesday

Williams Syndrome Wednesday: See the Hope

See the hope We’re about to deliver something very precious to you, and without your support, it won’t make it. We’re entrusting our sweet little girl to you, but that’s not what I’m talking about. When we drop her off to you, we’re delivering our hope. Take good care of it. We hope that she will be challenged but not left behind. We hope that she will be included, but also be seen as an individual that needs more. She will need more to learn. More to succeed. And more to thrive. She will need therapists, friends, caregivers, nurturers, protectors,…

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#thrive2016, Parenting, Sewing and Other Crafting Disasters, Williams Syndrome, williams syndrome wednesday, Year to Thrive

Williams Syndrome Wednesday: Crafting with Exceptional Kids

Part of my New Years #thive2016 resolution is ensuring the whole family thrives. So over the weekend I thought we should do a typical family activity. We should make a craft. But special needs crafting ideas are hard to come by. Not only do both my kids like to make things, Allie gets to work on some of those “therapy skills” when she’s doing crafts at school. Why not do one at home? I found an easy craft over at The Inspired Home and rounded up all the supplies. This isn’t something we’ve done at home much so I had no idea…

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2016: My Year to Thrive

Just over 3 short years ago, our second child was born. She was born small having suffered in-utero growth restriction and the first of many diagnoses she would receive was “Failure to Thrive”. She wasn’t getting enough nutrition and wasn’t growing as she should. It was heartbreaking. From there, she was developmentally delayed, had hypotonia, was socially delayed, tongue tied, had mild pulmonary aortic stenosis, was found to be missing 28 genes on chromosome 7 consistent with a diagnosis of Williams Syndrome. She had high calcium, poor mouth control, vision issues, hearing issues, digestive issues, sleep issues, suspected neuro issues…

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Five Tips: Buying gifts for littles with exceptional needs

mommydo.com | 5 tips for buying gifts for toddlers with special needs from a Mom of a child with Williams Syndrome

It’s that time of year. Make your list. Check it twice. Except, when one of the kids on your list has a developmental disability or other special needs. Choosing special needs gifts or gifts for kids with disability can seem like a challenge. Here are a few tips. It’s our 3rd Christmas with Allie, and each one has been a bit of a struggle. I don’t really know what she’d like. Certainly no one else knows what she’d like. Shopping for kids with exceptionalities isn’t easy. Every child comes with a unique set of likes and watch outs – many of…

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