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That’s Life

Parenting, special needs parenting, That's Life, Williams Syndrome, Year to Thrive

2016: My Year to Thrive

Just over 3 short years ago, our second child was born. She was born small having suffered in-utero growth restriction and the first of many diagnoses she would receive was “Failure to Thrive”. She wasn’t getting enough nutrition and wasn’t growing as she should. It was heartbreaking. From there, she was developmentally delayed, had hypotonia, was socially delayed, tongue tied, had mild pulmonary aortic stenosis, was found to be missing 28 genes on chromosome 7 consistent with a diagnosis of Williams Syndrome. She had high calcium, poor mouth control, vision issues, hearing issues, digestive issues, sleep issues, suspected neuro issues…

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Williams Syndrome Wednesday: Genes or Just Because?

So there’s this problem we’re having. It’s kind of like when a baby isn’t sleeping through the night… except that by ‘not sleeping through the night’ I mean “baby won’t close her eyes for any reason, like not even to blink between 11pm and 2,3,4,5 am”. The time on the clock is variable but the effect is the same. We live in a zombie like state. We’re 4 weeks from one year of not getting any freakin’ sleep. We have devised a system whereby one parent stays on the main floor with baby and weathers the sleepless storm of tears,…

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Baking, Food, Parenting, That's Life

Do you have a bread machine?

If you do, you need this book: The Artisan Bread Machine by Judith Fertig It is DEF a MOMMYDO favourite. If you have the machine, but not the book, try this simple but delicious white bread recipe from page 24. Blue Ribbon Bread Machine Bread – 2LB loaf 8tsp granulated sugar 1 1/2tsp instant or bread machine yeast 1 1/3 cups water 1/3 cup vegetable oil 4 cups flour 2 tsp salt 1. Add sugar, yeast and water to the bread pan. Let stand for 10 minutes or until yeast starts to bubble. 2. Add oil. Spoon flour on top…

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Lost…and found. (I’m gonna talk miscarriage so if you’re rather come back tomorrow – that’s cool)

Today is Pregnancy and Infant Loss and Remembrance Day. And, I know, nobody talks about miscarriage and babyloss. But today, I can’t help myself. If nobody talks about how a miscarriage threw their life for a loop how would anyone else know it’s ok to feel the same. If nobody talks about miscarriage, how do you know some people just keep keeping on, and that’s ok too. If nobody talks about miscarriage, how do you learn that it happens to lots and lots of women and you’re not alone. YOU’RE NOT ALONE. My first miscarriage in a word? Sad. Chest-achingly,…

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Hey, Let’s build lego

…for 7 hours straight. Said no parent. Ever. I was gonna post a picture of the great castle we built with (for) the boy today. I used to collect them in my younger days – so we were working on a big 800 piece set from my youth. Yep, I was gonna post a pic of the castle except IT’S STILL NOT DONE! Hub and I switched off on and off building building duty for as long as most people consider a day’s work and didn’t manage to complete the $*#%ing thing. And we need to wake up in the…

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Williams Syndrome Wednesday: Sit Up Proud

Little Miss sat unsupported for a short time today…maybe 2 min. After spending time with a Mommy group filled with typical children yesterday and having a little boo-hoo over how hard it is to watch all the kiddies moving so quickly through sitting to making moves towards crawling (or already crawling) and now starting to pull themselves up, to say I was delighted was an understatement. Of course the camera was no where to be found and phone battery was dead, but I’ll snap some pics today if she’s interested in a repeat performance. As I go through this journey…

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Baking, Food, Parenting, That's Life

When bad things happen to good cake.

After posting that I wanted to make something the other day, I decided I needed to start small. I love to bake, needed to entertain the boy and had a fancy cake mix I’d bought on sale at Williams Sonoma. Super! We were gonna make cupcakes but couldn’t find the damned liners, so settled on a 2 layer, 8 and 9 inch cake. Like I said, the mix was snazzy, with confetti in the cake. Perfect for the boy. So we baked it up. Mostly I baked and he whined about when he could eat it. FINALLY it was ready…

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