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Parenting, special needs parenting, Williams Syndrome

Williams Syndrome Wednesday: The Talk

On this journey I’ve learned a few things. Ok, maybe a great number of things. But one of the most important things I’ve learned is that there are LOTS of pretty good days (even great days)…being a special needs parent isn’t all doom and gloom. But then, out of nowhere, when you least expect it, your heart breaks all over again. This past weekend, the boy and I were out visiting local businesses looking for donations for The Auction for Alma. He remembers the auction from last year – we jumped into the bidding to secure the Lego set that…

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A little “Day Off” shopping trip to Girl Friday

Do you have a shop you consider “your store”? For me, it’s Girl Friday here in Toronto. I have a few days off and wanted to grab a new pair of jeans so I popped in today. I’ve been on the hunt for flattering “not skinny” jeans. But, having recently read a few articles that call my boot cut low-rise jeans “The new Mom Jeans” and not in a good way, I needed help to ensure I didn’t fall into buying the hottest jeans from the early 2000’s somewhere. Enter Girl Friday. First – there is no possible way to…

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Food, Parenting, Why Is It Never Takeout Day?

Opa! Lactose-Free Tzatziki Recipe

Lactose-Free Tzatziki Recipe So being lactose intolerant doesn’t just mean no milk or cheese – it pretty much puts an end to anything creamy and delicious until you can find a decent work around. One that has eluded me for years is creating a simple lactose-free tzatziki. I don’t really have time to cheese-cloth drain anything to the right consistency and with no lactose free Greek yogourt available in Canada I was out of luck until… Lactose-free greek yogourt has arrived Finally, Liberté launched Lactose Free Greek Yogourt! I grabbed some on Friday night and yesterday was the first time…

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Parenting, special needs parenting, Williams Syndrome

Obi’s Film Debut

My friend, the talented director Rob Quartly, was pretty interested in Alma’s story, the lore around Williams Syndrome and her super cute smile. So he created this lovely little film about our family to help spread awareness of Williams Syndrome. Have a look and share with friends. One day, no will have to ask me to explain what Williams Syndrome is. Through films like this, I’ll have already told them. Enjoy! [vimeo 108925607 w=500 h=281] melanie

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Williams Syndrome Wednesday on Thursday: Using my power for good

All the fundraising and workshop planning is going great. The auction closes tonight!!! ** But real life continues. Obi currently has a team of 14 doctors, specialists and therapists and this we added two more, which stung more than I thought it would… And her name came up for a preschool spot today. This specialized pre-school enrolls special needs and some ‘community’ kids (not special needs) and we’re going to check it out in 2 weeks to decide if we want to enroll her or stay on the wait list for another year. Again, another moment of really realizing my…

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Williams Syndrome Wednesday: A shout Out to the Villiage

If you know me at all, you know that I am currently hounding people for silent auction donations and silent auction bids. I am a pain in the ASS. But I’m also committed to raising awareness for little Obi and that commitment requires funds. In this particular case, funds to help cover some of the costs for a 1-day educational day at Sick Kids in Toronto for WS families. A noble effort and a huge ton of work… but I see it like this: When you’re new to the neighbourhood – or in this case, a rare genetic syndrome –…

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When the going gets busy, the busy get slow-cookin’

mommydo.com | Melt-in-your-mouth slow cooker ribs | quick and easy and delicious ribs you make in your crockpot

I’ve been crazy busy these past few *gulp* months. I even broke my own smug ‘takeout only once every 2 weeks rule’ last week and had takeout (or takeout leftovers) EVERY NIGHT. So yesterday I hauled out the slow cooker to help pull me out of my ‘too busy to cook, to smug to eat any more takeout’ blues and try the recipe that produced these succulent beauties… Ribs? In a slow cooker? Oh yes I did. The meat was from our local shop Rowe Farms (so good) and the recipe from Food Network magazine. Easy. Seen here with oven…

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Williams Syndrome Wednesday: Hand Claps

The little miss has started clapping her hands, initiating peek-a-boo and ‘saying’ a couple of words. We think she says “hi”, “Daddy” and “done”. Still not sure if they are intentional words or just sounds that kind of sound like words but regardless, it’s progress. It seems like Obi’s development plateaus then leaps forward – all three of the above are a big, big deal. It’s hard to find the time amidst all the management and logistics and worry and fear to celebrate. But these week, we make time. The little miss claps to show pleasure, plays a game to…

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Parenting, special needs parenting, Williams Syndrome

Williams Syndrome Wednesday Really Late: Little Heartbreaks

I’ve had 2 rather unexpected moments – both really teary and both out of the blue. Sometimes I forget that I live this new and unexpected life. It’s becoming a normal life. Doesn’t everyone else walk in the door and find they’re forgotten an OT appointment and find the therapist halfway through walking lessons with their babe and her caregiver? Isn’t everyone up late scouring the internet for bouncy chairs for developmentally delayed sensory seekers who like you bounce? Did you not take a moment today to wonder if integrated or specialized SpecEd would better suit your child? I did…

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