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disability, Disability Parenting, Parenting, special needs parenting, Williams Syndrome, williams syndrome wednesday

Starting school with disability #WilliamsSyndromeWednesday

Starting School with a Disability | Mommydo.com

There are two parts to registering a child who is starting school with a disability. There’s the functional part – who do you see, what do you need to bring? And then there is the emotional part. This is not about the functional part. Enrolling our daughter in school was the hardest thing I’ve dealt with on our parenting journey. So hard that it’s taken me a year to talk about it. But today, when I saw that another mom I know is in the same place I was last year, I felt it was time to open up. I’m going to skip…

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Nintendo Switch #fivefavesfriday

mommydo.ca || Nintendo Switch Mario Edition Five Faves Friday

Nintendo Switch is here! Today is the day! It’s Launch Day for the Nintendo Switch. My son and I had the chance to test out the Switch here in Toronto. And I have to say, we were both smitten. I am not a gamer by any stretch as was evident earlier today when I stood in line to nab a console for our family. It was def a case of one-of-these-things-is-not-like-the-other. But I’m quite certain this is the next great family console. And here’s why. melanie

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Thrive5 in celebration of Thrive Summit Workshops

I’m excited to be attending The Thrive Summit on Monday. When I first made the decision attend this session to learn and share how I #ThriveinMyLife,  I was mentally planning my February #ThriveTop5 post early in March. I had an amazing month (don’t worry, I’ll still get the post up there) with all kinds of great #thrive2016 moments. I was excited about the interactive session, networking and unconference sessions too. Then life did one of those things life does. My 6-month plan to change my work situation changed for me and I was suddenly there – six months too soon. I wasn’t…

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Parenting, special needs parenting, Williams Syndrome, williams syndrome wednesday

Williams Syndrome Wednesday: An Open Letter To Justin Trudeau

An inclusive school system would see my children as equal  Dear Mr. Trudeau, I just watched a video in which you spoke of the tremendous value of the diversity in our public school system. I, too, value the ethnic diversity in my son’s public school in our neighbourhood. Sadly, without an inclusive school environment, my daughter won’t get to experience it. While we have worked tirelessly to include those of every race/ethnicity, culture, religion, gender, social class, and sexual orientation in our schools, kids with disabilities don’t always make the cut…at least not always in the school closest to home. Kids like my…

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#thrive2016, Parenting, Year to Thrive

Helping New-To-Canada Syrian Girls Thrive

Helping New-to-Canada Syrian Girls Thrive You know Thrive is a big theme here this year. I just heard about an amazing initiative from Glen Bernard Camp, just west of Algonquin Park that has been created to offer the summer camp experience to help 24  who have recently arrived from Syria. When you think of summer in Canada, the cottage, trailer, tent camping and summer camp are such an integral part of our summer culture. I spent every summer with my dad at our cottage (we called it camp up North) fishing, swimming, canoeing and sailing. Those are some of my…

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Williams Syndrome Wednesday: See the Hope

See the hope We’re about to deliver something very precious to you, and without your support, it won’t make it. We’re entrusting our sweet little girl to you, but that’s not what I’m talking about. When we drop her off to you, we’re delivering our hope. Take good care of it. We hope that she will be challenged but not left behind. We hope that she will be included, but also be seen as an individual that needs more. She will need more to learn. More to succeed. And more to thrive. She will need therapists, friends, caregivers, nurturers, protectors,…

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#thrive2016, Parenting, Sewing and Other Crafting Disasters, Williams Syndrome, williams syndrome wednesday, Year to Thrive

Williams Syndrome Wednesday: Crafting with Exceptional Kids

Part of my New Years #thive2016 resolution is ensuring the whole family thrives. So over the weekend I thought we should do a typical family activity. We should make a craft. But special needs crafting ideas are hard to come by. Not only do both my kids like to make things, Allie gets to work on some of those “therapy skills” when she’s doing crafts at school. Why not do one at home? I found an easy craft over at The Inspired Home and rounded up all the supplies. This isn’t something we’ve done at home much so I had no idea…

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Valentine Rice Krispie Treats

easy recipe video williams syndrome

Valentine Rice Krispie Treats I was lucky enough to win a Rice Krispies prize pack in the #treatsfortoys twitter party in December. I’m a big fan of the program where Rice Krispies donates money for toys for every toy shaped Rice Krispie Treat posted with #treatsfortoys. This year, the campaign raised $40,000. I thought I’d say Thank You for the amazing prize (which included a whole bunch of Rice Krispies AND a Visa gift card) by making a video of the first thing we made with the delivery. The whole family enjoyed these and I loved making my first food video.  …

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2016: My Year to Thrive

Just over 3 short years ago, our second child was born. She was born small having suffered in-utero growth restriction and the first of many diagnoses she would receive was “Failure to Thrive”. She wasn’t getting enough nutrition and wasn’t growing as she should. It was heartbreaking. From there, she was developmentally delayed, had hypotonia, was socially delayed, tongue tied, had mild pulmonary aortic stenosis, was found to be missing 28 genes on chromosome 7 consistent with a diagnosis of Williams Syndrome. She had high calcium, poor mouth control, vision issues, hearing issues, digestive issues, sleep issues, suspected neuro issues…

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Five Tips: Buying gifts for littles with exceptional needs

mommydo.com | 5 tips for buying gifts for toddlers with special needs from a Mom of a child with Williams Syndrome

It’s that time of year. Make your list. Check it twice. Except, when one of the kids on your list has a developmental disability or other special needs. Choosing special needs gifts or gifts for kids with disability can seem like a challenge. Here are a few tips. It’s our 3rd Christmas with Allie, and each one has been a bit of a struggle. I don’t really know what she’d like. Certainly no one else knows what she’d like. Shopping for kids with exceptionalities isn’t easy. Every child comes with a unique set of likes and watch outs – many of…

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