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Life

Parenting, special needs parenting, Williams Syndrome

Williams Syndrome Wednesday on Thursday: Using my power for good

All the fundraising and workshop planning is going great. The auction closes tonight!!! ** But real life continues. Obi currently has a team of 14 doctors, specialists and therapists and this we added two more, which stung more than I thought it would… And her name came up for a preschool spot today. This specialized pre-school enrolls special needs and some ‘community’ kids (not special needs) and we’re going to check it out in 2 weeks to decide if we want to enroll her or stay on the wait list for another year. Again, another moment of really realizing my…

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Parenting, special needs parenting, Williams Syndrome

Williams Syndrome Wednesday: A shout Out to the Villiage

If you know me at all, you know that I am currently hounding people for silent auction donations and silent auction bids. I am a pain in the ASS. But I’m also committed to raising awareness for little Obi and that commitment requires funds. In this particular case, funds to help cover some of the costs for a 1-day educational day at Sick Kids in Toronto for WS families. A noble effort and a huge ton of work… but I see it like this: When you’re new to the neighbourhood – or in this case, a rare genetic syndrome –…

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Food, Parenting, Why Is It Never Takeout Day?

When the going gets busy, the busy get slow-cookin’

mommydo.com | Melt-in-your-mouth slow cooker ribs | quick and easy and delicious ribs you make in your crockpot

I’ve been crazy busy these past few *gulp* months. I even broke my own smug ‘takeout only once every 2 weeks rule’ last week and had takeout (or takeout leftovers) EVERY NIGHT. So yesterday I hauled out the slow cooker to help pull me out of my ‘too busy to cook, to smug to eat any more takeout’ blues and try the recipe that produced these succulent beauties… Ribs? In a slow cooker? Oh yes I did. The meat was from our local shop Rowe Farms (so good) and the recipe from Food Network magazine. Easy. Seen here with oven…

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Parenting, Williams Syndrome

Williams Syndrome Wednesday: Hand Claps

The little miss has started clapping her hands, initiating peek-a-boo and ‘saying’ a couple of words. We think she says “hi”, “Daddy” and “done”. Still not sure if they are intentional words or just sounds that kind of sound like words but regardless, it’s progress. It seems like Obi’s development plateaus then leaps forward – all three of the above are a big, big deal. It’s hard to find the time amidst all the management and logistics and worry and fear to celebrate. But these week, we make time. The little miss claps to show pleasure, plays a game to…

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Parenting, special needs parenting, Williams Syndrome

Williams Syndrome Wednesday Really Late: Little Heartbreaks

I’ve had 2 rather unexpected moments – both really teary and both out of the blue. Sometimes I forget that I live this new and unexpected life. It’s becoming a normal life. Doesn’t everyone else walk in the door and find they’re forgotten an OT appointment and find the therapist halfway through walking lessons with their babe and her caregiver? Isn’t everyone up late scouring the internet for bouncy chairs for developmentally delayed sensory seekers who like you bounce? Did you not take a moment today to wonder if integrated or specialized SpecEd would better suit your child? I did…

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Parenting, special needs parenting, Williams Syndrome, williams syndrome wednesday

Williams Syndrome Wednesday: Permission to Let It Be

Sometimes it’s nice to hear someone say “Things are ok as they are.” This week’s dose of chillax came from the special feeding clinic that baby Obi now attends. Feeding has been a huge struggle right from day one. We finally got her eating pureed baby food at about a year. We’ve been trying to increase textures but not having any luck. And do you know what the experts said? Let her eat purees. Thicken them slowly over months and months. Stop pushing her to move ahead faster than she can. It’s ok. You know, it’s not ok for me…

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Parenting, special needs parenting, Williams Syndrome, williams syndrome wednesday

Williams Syndrome Wednesday: 1 in 20,000 is the lonliest number

Yeah, I know, I’ve missed a few Wednesdays. I totally had ‘that thing’ happen. The one where you have something on your mind and you really want to say it – but it’s such a big friggin’ downer for you and everyone else that you don’t say it. And then, as it’s all you want to say, you can’t think of anything else to say, so you just say nothing. Yep. I’ve said nothing these past weeks because I don’t want to actually commit these words to print “it’s just not the same”. There, it’s out there now. I have…

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Parenting

I never really think of St. Paddy’s day as Stew day

But I did see stew come up a lot through the day yesterday. If you’re like me, and are now craving stew, try this recipe for Italian Beef stew from Cooking Classy. It’s March 18 so you don’t have to worry about the non-Irish part… I made it last week and it was super delish. I, of course, didn’t take a picture because we’re busy like that these days. But I’m sure the one I’m about to ‘share’ is better than I would have taken anyway. PHOTO: Cooking Classy Italian Beef Stew Prep Time: 25 minutes Cook Time: 4 hours,…

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Parenting

If connection is better for typical kids…

is it critical for those with special needs? I just read this article which talks about how too much time in a front-facing stroller can limit your baby’s speech and physical development. Studies show that babies in rear-facing strollers have more advanced language skills than babies in front-facing strollers. I was very keen for my boy to be in a parent facing stroller which is why I chose the Stokke Xplory for my first born, and selected the Stokke Crusi for my daughter. After I learned about her Williams Syndrome, I was doubly glad I had picked another one of…

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