Category

special needs parenting

Disability Parenting, special needs parenting, Williams Syndrome

Lessons for life prepare kids for a better world

child with Williams syndrome giving a presentation in kidergarten

Lessons for life prepare kids for a better world Kindergarten registration time is here in Ontario. I recently stopped by my daughter’s former special needs pre-school to talk to nervous parents about choosing the right school for their kids. Trying to decide where to have their kids spend the next 8-10 years of their lives is tough. When you child had a disability, it feels impossible to make the call. I feel exceptionally lucky that my daughter has the placement she does. Now in SK, she loves school, has friends, is with her peers and is thriving. It’s been like…

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Starting school with disability #WilliamsSyndromeWednesday

Starting School with a Disability | Mommydo.com

There are two parts to registering a child who is starting school with a disability. There’s the functional part – who do you see, what do you need to bring? And then there is the emotional part. This is not about the functional part. Enrolling our daughter in school was the hardest thing I’ve dealt with on our parenting journey. So hard that it’s taken me a year to talk about it. But today, when I saw that another mom I know is in the same place I was last year, I felt it was time to open up. I’m going to skip…

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Williams Syndrome Wednesday: 5 lessons from #WSA2016

Williams Syndrome Wednesday Lessons from #WSA2016 - mommydo.com Featured Image

I had the wonderful privilege of attending the WSA Williams Syndrome Convention in Columbus Ohio last week. As the ambassador for Canadian families, I connected with friends made in years’ past and made new friendships with fellow Canadians and with parents and individuals with Williams Syndrome from all over the US. Attending a big gathering of Williams Syndrome families is exceptionally rewarding. The information presented is invaluable, even if it is a little overwhelming. And the tactics, strategies and trial and error shared by other parents give a real, honest, uplifting and sometimes heartbreaking look into the lives of those…

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Thrive5 in celebration of Thrive Summit Workshops

I’m excited to be attending The Thrive Summit on Monday. When I first made the decision attend this session to learn and share how I #ThriveinMyLife,  I was mentally planning my February #ThriveTop5 post early in March. I had an amazing month (don’t worry, I’ll still get the post up there) with all kinds of great #thrive2016 moments. I was excited about the interactive session, networking and unconference sessions too. Then life did one of those things life does. My 6-month plan to change my work situation changed for me and I was suddenly there – six months too soon. I wasn’t…

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Parenting, special needs parenting, Williams Syndrome, williams syndrome wednesday

Williams Syndrome Wednesday: An Open Letter To Justin Trudeau

An inclusive school system would see my children as equal  Dear Mr. Trudeau, I just watched a video in which you spoke of the tremendous value of the diversity in our public school system. I, too, value the ethnic diversity in my son’s public school in our neighbourhood. Sadly, without an inclusive school environment, my daughter won’t get to experience it. While we have worked tirelessly to include those of every race/ethnicity, culture, religion, gender, social class, and sexual orientation in our schools, kids with disabilities don’t always make the cut…at least not always in the school closest to home. Kids like my…

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Parenting, special needs parenting, That's Life, Williams Syndrome, Year to Thrive

2016: My Year to Thrive

Just over 3 short years ago, our second child was born. She was born small having suffered in-utero growth restriction and the first of many diagnoses she would receive was “Failure to Thrive”. She wasn’t getting enough nutrition and wasn’t growing as she should. It was heartbreaking. From there, she was developmentally delayed, had hypotonia, was socially delayed, tongue tied, had mild pulmonary aortic stenosis, was found to be missing 28 genes on chromosome 7 consistent with a diagnosis of Williams Syndrome. She had high calcium, poor mouth control, vision issues, hearing issues, digestive issues, sleep issues, suspected neuro issues…

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Five Tips: Buying gifts for littles with exceptional needs

mommydo.com | 5 tips for buying gifts for toddlers with special needs from a Mom of a child with Williams Syndrome

It’s that time of year. Make your list. Check it twice. Except, when one of the kids on your list has a developmental disability or other special needs. Choosing special needs gifts or gifts for kids with disability can seem like a challenge. Here are a few tips. It’s our 3rd Christmas with Allie, and each one has been a bit of a struggle. I don’t really know what she’d like. Certainly no one else knows what she’d like. Shopping for kids with exceptionalities isn’t easy. Every child comes with a unique set of likes and watch outs – many of…

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Mommydo Review: The Honest Company at well.ca and GIVEAWAY

The Honest Company Review I’m very choosy about what I use on the kids, especially since Alma. But, sometimes wading through all the choices can be daunting. I have to admit I clapped my hands and squealed the first time I came across The Honest Company. I greedily read everything about how it started, their mission and what they offered Moms like me, who are looking for new, progressive options their families. I love planet friendly, human friendly, CUTE products with sharp design. Sadly, shipping them to Canada was expensive. Sigh. The Honest Company at Well.ca. When I heard the Honest Company was coming…

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Williams Syndrome Wednesday: Advice for new members of the Special Needs Moms Club

It’s not earth shattering. In fact, it’s probably the same advice you got when you first started dating years ago. And, I wish someone had given it me. Here it is: Hang on to your friends.  Hang on tight. Here’s why: There’s going to be a time when they surround you. They’ll be there for you. They won’t know what to say and will probably say things that they regret or things that make you cringe. They will probably stick their feet in their mouths (Will she ever be normal?). Yikes. But that’s just because they don’t know what to…

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Williams Syndrome Wednesday: 140 Characters CAN Change the World

I recently wrote about the NYT best-selling novel that I stopped reading because the author had used the r-word (retarded) in the book, published this year. I had a big long rant on my own little blog and when I published the post felt very pleased with myself. After a few days I realized I was still mad. It’s like when someone says something that you disagree with and instead of speaking up, you walk away and think about all the things you wish you had said out loud. So I decided to tweet the author and let her know that I…

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