Williams Syndrome Wednesday: See the Hope

Williams Syndrome Wednesday, See The Hope, Mommydo.com

We’re about to deliver something very precious to you, and without your support, it won’t make it.

We’re entrusting our sweet little girl to you, but that’s not what I’m talking about. When we drop her off to you, we’re delivering our hope. Take good care of it.

We hope that she will be challenged but not left behind. We hope that she will be included, but also be seen as an individual that needs more. More to learn. More to succeed. More to thrive.

She will need therapists, friends, caregivers, nurturers, protectors, cheerleaders and teachers. There’s a good chance that the teacher will, at times, need to be all of the above. Unless you intervene and insist on extra support. Unless you put hope before budgets, potential before policy and belief in a child before what’s best for the board.

She will need you to hope too. And hope isn’t always easy. Believe me, I know.

What’s easy is reading about a diagnosis and thinking there’s no point in pushing harder. What’s easy is choosing what is practical over what is possible. Or thinking you’re doing the best when you come up against the word ‘no’ once…and giving up. Making people say no over and over makes you unpopular.

It’s hard to be unpopular. I get that. I do. It likely won’t take very long before I am unpopular to you.

Before that happens we need you to take one for the team and ask yourself if maybe you can do better. Wouldn’t it be nice if you and our family and hope could be on the same team?

We could find a way to get little Allie what she needs so she can navigate her way through the school and not get hurt, lost or simply leave.

Or how about a way to harness all the research that’s been done on teaching kids with Williams Syndrome how to read and teaching her that way, instead of how all the other kids learn.

Or maybe a way to let her have the education she has a right to – with all necessary supports – in her community so getting to go to school with her brother won’t compromise her chances for making something of herself.

And maybe every time you get faced with someone who says that’s too much to ask, it’s not how we do things, or she’s not worth the investment, you’ll remember the day we delivered our hope to you. You’ll see the hope. Not all the things that stand in her way. You’ll be the one who makes the difference for her, instead of the one who sees her as someone who doesn’t deserve to be hoped for.

The day is just around the corner. The day we deliver our daughter and all the hope we have for her to you.

Stand out front and welcome her in and see that hope. Then look me in the eye and see all the hope I have for you, too.

 

 

 

 

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