Williams Syndrome Wednesday: The Long Pause


It’s begun.

The long pause after people say Allie is adorable and ask how old she is. She is small for her age, so I suppose she could be mistaken for her developmental age. People are really thrown when their 10 or 12 or 14 month old is the same size and further along. They get uncomfortable. They’re not sure what to say. There’s a long, long pause before then say again, just how cute she is.

Sometimes I let them off the hook and tell them about WS and how it affects her. And sometimes I just don’t feel like explaining her. Sometimes I just talk about the weather or the park we’re in or the boy.

At the wading pool, she’s sitting, splashing, squealing. She’s smiling and happy. At that moment, it’s the most important thing about her.

I am definitely a fierce advocate. I strongly believe that spreading the word about Williams Syndrome is the key to inclusion and acceptance and so on.

But sometimes, I just want to let a little girl splash in a pool.

In the middle of that long pause, I hear her laughter, her little songs, her joy.

My words about her syndrome would drown it out.

Sure, people would learn more about what makes her different.

But they’d miss all the parts that make her special.

1 Comment

  1. Tara Mokohonuk

    July 8, 2015 at 12:23 pm

    Beautifully said.


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