Williams Syndrome Wednesday: The Unknown

Control. Surrendered.

Expectations. Unrealistic.

Certainty. Uncertain.

Possible. Yes.

Impossible. Yes.

Probable. Not likely.

Likely. Not realistically.

It’s the unknown that makes this journey so challenging. It’s a huge spectrum. There’s no knowing where she’ll sit on it. Though she’s caught up on many milestones, there’s no research that supports this will mean she’ll remain on that curve. She could stall at any time and find herself falling behind again.

Will learning sign language help? Maybe. Will OT ward off physical delays? Perhaps a little. Will the early, consistent exposure to solids help prevent food issues? Could be. Or not.

There’s just no knowing.

And if there’s one thing I hate in this world it’s not knowing.

I realize I need to surrender my need for control and just accept things are just going to be as they are.

I just can’t figure out how to get there from here.

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