Having your life turned upside down by a life-altering diagnosis makes you tired. It’s exhausting. For one, your brain doesn’t turn off so like a car left with the motor running, your gas tank gets to empty pretty quick.
Second, you feel like to need to be doing SOMETHING, so you flit around tidying a little here, doing a little laundry over there, reading a little more on one site, posting a little on another. Then there are all the things you were doing before you were doing this… planning, pushing, advocating. I don’t know how people do it.
And I am now ‘people’. Sigh. I have to believe it gets easier.